hATTR Compass is designed to:

hATTR Amyloidosis - help accelerate or confirm the diagnosis

Help accelerate or confirm the diagnosis of hATTR amyloidosis

hATTR Amyloidosis - provide support and resources

Provide the support and resources patients and healthcare professionals need throughout the genetic testing process

hATTR Amyloidosis - empower patients

Empower patients and their healthcare professionals to make the most informed decisions about their health care

hATTR Compass Program: Map Your Genetic Journey

If you are considering genetic testing and genetic counseling through the hATTR Compass Program, you can use this timeline to track where you are in your hATTR Compass Program journey and understand what options and resources are available to you at each step in your journey.

hATTR Compass Program - Step 1

Could it be hATTR amyloidosis?

Visit hATTRChangeTheCourse.com to learn about the hereditary nature and symptoms of hATTR amyloidosis.

Tip: Download several helpful tools and tips for patients and caregivers.

hATTR Compass Program - Step 3

Order an hATTR Compass Program Kit Online:

hATTR Compass Program - Step 5

Analyze DNA:

Once the lab receives the kit, the DNA samples are analyzed to identify any genetic mutations. A report is sent to the doctor and genetic counselor within 2 – 4 weeks.

hATTR Compass Program - Step 7

Make a Plan:

Doctors and patients can work together to make a healthcare management plan based on the results. There are many resources available to help you learn more about hATTR amyloidosis and support options. Try these:

Find Answers with the hATTR Compass Program:

Akcea Therapeutics and Ambry Genetics are partnering to offer anonymous, no-cost genetic testing and confidential genetic counseling to patients suspected of having or clinically diagnosed with hATTR amyloidosis through the hATTR Compass Program.

hATTR Compass Program - Step 2

Collect DNA Samples:

Using the kit, patients should work with their doctors to collect blood or saliva samples and fill out the included Test Requisition Form. Follow the instructions provided to submit the kit for analysis.

hATTR Compass Program - Step 4

Understand Your Results:

Genetic counselors are available to discuss the genetic testing results with you and answer any questions you may have.

  • Doctors: Ambry Genetic Counselors are available to answer your questions. Contact +1 (949) 900-5500
  • Patients: Genetic counseling is available through PWNHealth. Contact +1 (888) 494-7333
hATTR Compass Program - Step 6
hATTR Compass Program - Step 1

Could it be hATTR amyloidosis?

Visit hATTRChangeTheCourse.com to learn about the hereditary nature and symptoms of hATTR amyloidosis.

Tip: Download several helpful tools and tips for patients and caregivers.


hATTR Compass Program - Step 2

Find Answers with the hATTR Compass Program:

Akcea Therapeutics and Ambry Genetics are partnering to offer anonymous, no-cost genetic testing and confidential genetic counseling to patients suspected of having or clinically diagnosed with hATTR amyloidosis through the hATTR Compass Program.


hATTR Compass Program - Step 3

Order an hATTR Compass Program Kit Online:


hATTR Compass Program - Step 4

Collect DNA Samples:

Using the kit, patients should work with their doctors to collect blood or saliva samples and fill out the included Test Requisition Form. Follow the instructions provided to submit the kit for analysis.


hATTR Compass Program - Step 5

Analyze DNA:

Once the lab receives the kit, the DNA samples are analyzed to identify any genetic mutations. A report is sent to the doctor and genetic counselor within 2 – 4 weeks.


hATTR Compass Program - Step 6

Understand Your Results:

Genetic counselors are available to discuss the genetic testing results with you and answer any questions you may have.

  • Doctors: Ambry Genetic Counselors are available to answer your questions. Contact +1 (949) 900-5500
  • Patients: Genetic counseling is available through PWNHealth. Contact +1 (888) 494-7333

hATTR Compass Program - Step 7

Make a Plan:

Doctors and patients can work together to make a healthcare management plan based on the results. There are many resources available to help you learn more about hATTR amyloidosis and support options. Try these:


 
Information on hATTR Amyloidosis

Support Resources are available to you every step of the way

Staying connected through Backpack Health

Backpack Health is a mobile and web-based app that helps patients keep track of their symptoms, procedures, diagnostic tests and ongoing treatment for hATTR amyloidosis. The tool also makes it easy for individuals and families navigating the hATTR amyloidosis journey to share important medical information with healthcare professionals. Access to the app is complimentary for patients with hATTR amyloidosis at join.backpackhealth.com/hATTRCompass.

Join Now

There are many resources available to support patients and their doctors through the genetic testing process by providing support, guidance and additional resources:

 

Download the hATTR Compass Guide for Patients, Caregivers and Families

Download the hATTR Compass Guide for Healthcare Professionals

hATTR Change the Course website has additional information and resources on hATTR Amyloidosis.

Learn More